Adolescent Alopecia Areata Registry

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About Alopecia Areata

Alopecia areata (AA) is an autoimmune disease characterized by transient non-scarring hair loss on the scalp and other hair-bearing parts of the body. It is a heterogeneous disease, can have an unpredictable clinical course with variable time between episodes of relapse and remission, and is more common among adolescents than adults. The impact of AA extends beyond hair loss, as patients have higher risks of developing other autoimmune diseases and comorbidities. The psychosocial implications for adolescents living with alopecia areata can include embarrassment, self-consciousness, and subsequent reduced participation in school or extracurricular activities.

About our Adolescent AA Registry

This registry prospectively collects detailed patient-level data on a cohort of adolescent subjects, to evaluate the long-term safety and effectiveness of routine treatments in real-world clinical care. The collected data will support research on the natural history of the disease, treatment effectiveness and safety, adolescent growth and development, drug risk-benefit evaluation, and unmet need. Additionally, it will provide real-world evidence to inform clinical decision-making for patients and providers.

Granular, longitudinal outcome measures are collected during regular visits, including clinician-reported AA outcomes, lab measures and treatment history, as well as patient-reported outcomes (PROs) assessing symptom impact and quality of life. Drug safety data are also collected, including serious adverse events and other adverse events of special interest.

Read the press release, here.

Clinical outcome measures and PROs in the CorEvitas Adolescent Alopecia Areata Registry

Among the variables we collect, some of the key outcome measures to inform your research include:

Clinician-Reported Outcomes

Patient-Reported Outcomes

Registry Scientific Advisors

Picture of Maryanne Senna, MD

Maryanne Senna, MD

Assistant Professor of Dermatology, Harvard Medical School
Director, Lahey Hair Loss Center of Excellence & Hair Academic Innovative Research Unit

Picture of Brittany Craiglow, MD

Brittany Craiglow, MD

Associate Professor Adjunct--Dermatology, Yale School of Medicine

Picture of Brett King, MD, PhD

Brett King, MD, PhD

Associate Professor of Dermatology, Yale School of Medicine