SPHERES: Neuromyelitis Optica Spectrum Disorder (NMOSD) Registry

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STUDY VISITS

NMOSD PATIENTS

SITES

20 +

PROVIDERS

STATES

Participating Sites

CorEvitas has NMOSD clinical sites across the U.S. and we are always interested in expanding the registry for qualified sites.

Outcome measures in the CorEvitas NMOSD Registry

Among the variables we collect, some of the key outcome measures to inform your NMOSD research include:

Disease Characteristics

Primary Diagnosis
Year of onset and diagnosis of NMOSD
Details of neurological episodes (initial and subsequent relapses)
2015 IPND international consensus diagnostic criteria characteristics
Serology Status (AQP4, MOG)
EDSS (expanded disability status scale) Step Score
Montreal Cognitive Assessment (MoCA)
History of Infections
Comorbidity and Medical History

Patient Reported Outcomes

Modified Fatigue Impact Scale (MFIS)
PainDETECT Questionnaire (PD-Q)
EuroQol Visual Analogue Scale (EQ-VAS)
5-level EQ-5D version (EQ-5D-5L)
Short-Form McGill Pain Questionnaire-2 (SF-MPQ-2)
Pain Severity Numeric Rating Scale
Patient Health Questionnaire-2 (PHQ-2)
Visual Function Questionnaire - Utility Index (VFQ-UI)

Contact the SPHERES Registry Team:

NMOSD@corevitas.com or (508) 408-5426

Registry Scientific Advisors

Michael Levy, MD, PhD

Associate Professor, Harvard Medical School | Director, The NMO Clinic and Research Laboratory | Research Director, Division of Neuroimmunology & Neuroinfectious Disease, Massachusetts General Hospital

Jeffrey Bennett, MD, PhD

Professor of Neurology and Ophthalmology, Neuroscience University of Colorado School of Medicine (UCSOM) | Clinician, UCHealth

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SPHERES: Neuromyelitis Optica Spectrum Disorder (NMOSD) Registry

Participating Sites

Outcome measures in the CorEvitas NMOSD Registry

Among the variables we collect, some of the key outcome measures to inform your NMOSD research include:

Disease Characteristics

Patient Reported Outcomes

Contact the SPHERES Registry Team:

Registry Scientific Advisors

Michael Levy, MD, PhD

Jeffrey Bennett, MD, PhD

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In Partnership with the Guthy Jackson Charitable Foundation

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